Life

Where Have Those Damned Words Gone?

Sunrise over the East River

I’ll say one thing for all of our recent time in the hospital, they have the best damned views in the city. Most of my photos have weird shadows and reflections because of the double paned windows combined with my terrible photo taking skills when using the phone, but hey, I’ve woken up to worse.

Scary hospital stays are scary. How’s that for profound blathering? And when faced with these stays, we are a family that talks around things, jokes about them, because we do. I don’t want to cry any more than when I absolutely can’t hold it in, leaves me with one of those vicious migraines that have teeth and nausea every time, and hospital security gets really testy when you stand in the halls and scream profanities. In the past, I’d tell Husband I appreciated the vacation, but next time let’s pick a better hotel. These last few times, well. This is a fancy shmancy hospital, with tvs larger than the wall our living room tv hangs on. I told him it was the nicest hotel he’d ever taken me to. That was the joke, over and over with each new nurse, each new visitor. Not all that funny the first time, less so every time I said it, but again, wtf else am I going to say?

Words may be my thing, reading and writing them, but I lose them when I most need them just like a cab driver trying to explain in his third language that the crumpled fender of the car in front of his isn’t his fault.

In November I began reading a novel I had long been waiting for, and it’s truly rare for me to buy a book at full price. I wish I could more often to support authors, but my budget is limited and I read a lot. This one, though, I had to. Erin Morgenstern. There are many authors I admire for different strengths, and her strength is incredibly lush sentences I just get lost in. Nevertheless, I stopped reading once Husband was admitted because I just couldn’t relax into those opulent, fantastical dreams on the page. Nothing I can imagine myself writing.

Because my words are wrong, too raw. Too many shadows and distorted reflections that gauge their way out of my mouth with teeth and claws.

This morning I finished the novel. It didn’t inspire me to write anything beautiful, say anything beautiful, but I did bake an apple pie with all the cinnamon my heart desires, on top of a puff pastry crust with a layer of cheesecake in between, as close as I get to lush. Five minutes ago–as I was writing this–Husband’s doctor called, we’re looking at another inpatient stay next week.

Uncomfortably Numb

have you heard me screaming? I tried to do it quietly.

Well. Pretty much skipped 2019, didn’t I? Wish I could say that was true outside of the blogosphere, but life is what it is. Yesterday I saw this Tweet and this response and I thought, yes. Immediately followed by, maybe. I began this blog not expecting anyone to find it, and that was ok. I did it for me, and along the way gathered some followers, made some friends, connected with more than I had any right to expect. Mrs Fringe was a space for me to be not just mom/wife/dogwalker/reefer/writer/bitch/feminist/New Yorker, but the sum of those parts; a person (albeit a somewhat anonymous and edited one). It turned out great and perfect in all the ways for a long time, until it wasn’t, so I hit pause. I think I’m hitting the play button again, but life happens, so who knows.

How was your 2019? Mine was overall shit, with some wonderful bright spots. Art Child graduated from high school. Whee, I’m done, done, done with the public school system! That New Thing I was working on? I kept working, wrote to The End, and I’m pretty fucking proud of it. All the old qualifiers apply, no clue if anyone in the industry will like it/want it, but there you have it. I even went to a writers’ conference last summer and pitched it to a few agents, have done some limited querying, getting some interest. We’ll see. Hope for the best, expect the worst, blah blah blah.

The past couple of weeks on Twitter, reading my timeline I’ve just felt old. All these youthful, positive posts cataloguing the past decade in accomplishments, earnestly seeing the beginning of a new decade as something. There have been many New Years where my overriding thought has been wow, this past year kicked my ass. This year is not only not an exception, but I don’t even feel human anymore. When I tried to think about the decade gone, my mind started ticking off medical emergencies. The last 14? 15? years have been a twisted game of lurching from emergency to emergency, and 2019 will take its place up there in the top three. In the hospital with Husband, and then Mother-in-Law, and then Husband, and then Husband, and then Husband, and oh fuck the kids, MIL and I pretty much spent six months alternately holding our breaths and checking his, and then I spent most of the past two months inpatient with him.

All this time immersed in the world of medical interventions and I’ve learned four things really, really well. One: human beings aren’t designed for this level of sustained stress. Two: for every major medical intervention, there is a price to be paid–both physical and psychological–the more complex the intervention the higher the price, and you better believe this isn’t one of those no money down deals, they want that arm, leg, or kidney upfucking front. Three: I know who does or does not have real experience in the world of complex, chronic medical needs within ten seconds; by their understanding–or lack thereof–of what the actual, literal, monetary cost of our fucked American healthcare system is (if you’re reading this and you’re one of those mythical Americans who love your health insurance, all I can say is how nice for you, you’ve lived a charmed life with the luck of good genes), and what actually is/is not realistic to expect in terms of healing and recovery. In this skewed little corner of the world, out of the hospital doesn’t mean all better, it means the immediate risk/benefit of being inpatient tipped to the risk side, because nowhere harbors more antibiotic resistant bacteria than hospitals, so hey, congrats! Now you get to go home and do all this without a kitchen sending the patient three hot, fresh, reasonably nutritious meals a day, no nurses, no wonderful cart down the hall stocked with warm blankets and clean linens, and oh yeah, no teams of doctors coming to round, so multiple doctor appointments across the city weekly. What’s the fourth thing? I have the best kids in the universe, no shit.

I don’t know if any of my old faithful readers still check Mrs Fringe. If so, thank you (and hey, I’m not dead!). If not, that’s ok too. Maybe some new readers will find me. Mostly I’m hoping to blog my way back to the status of human, if that’s still possible.

PS: My camera has permanently decided it no longer wants to partner with my laptop, so for the foreseeable future all photos will be blurry cell pics.

Beach Bits

Yesterday for the first–and likely only–time this summer, Husband, Art Child and I made it to the beach together. This means we didn’t take the train to my beloved Brooklyn beach, but went to New Jersey. The water is colder, the waves rougher, you have to actually pay and get a little bracelet/badge thing to step onto the sand, but Husband prefers it. Sure, the sand in Brooklyn is finer and softer, but the Jersey shore doesn’t have chunks of glass sprinkled throughout. No, I don’t mean collectible beach glass, I mean bits from leftover broken bottles. Husband’s got those diabetic feet, extra care must be taken. Me? I’ve got feet like a goat, toughened from childhood and teenaged days walking on those Brooklyn beaches, and nights spent on the boardwalk–which, at the time, was not smooth and sanded like someone’s backyard deck. I’d get home each evening and spend twenty minutes with a pair of tweezers, removing splinters I hadn’t even felt going in. Do goats get splinters?

We’d only been there a little while and were standing at the shore debating the waves when a young couple walked by–twenties? thirties? and the man stopped to compliment Husband. If you’re someone who pays attention to that stuff, it makes sense, Husband appears very fit. To tell the truth, I didn’t notice the couple until I was seeing their backs, and his back looked like a guy who spends some time working on his body. But yanno what they say, looks can be deceiving. I was a young teenager when I met Husband, he had 6-pack abs and was all buff, has stayed that way through  the decades. All these years, never saw him do a sit-up, he never went to a gym, etc. He’s got whatever it is that makes some men go bald early and develop a new muscle from a vigorous sneeze. Good genes. On the outside. His insides? Not so much. Which has had a toll on the outside. It isn’t like the man thought my husband was twenty years younger than he is. No wrinkles, but his beard and chest hair are white, he’s got scars running down his chest and across his abdomen from open heart surgeries and various drainage tubes, a continuous glucose monitor planted in his side, and pretty much permanent bruises from the multiple insulin injections he gives himself daily–because needles and blood thinners aren’t a match made in heaven–and he’s much narrower than he used to be, muscles shrank some after that first open heart surgery. Do those twenty pounds count as lost if I picked them up and kept them for myself? But he still looks damned fine, and it’s reasonable for anyone seeing him on the beach to assume he spends regular time at the gym.

Husband was amused by the compliment, probably forgot about it a minute later, because it wasn’t a big deal, no long interaction. I kept thinking about it–prompted no doubt by the young women sunbathing behind us having a loud and running conversation about planned plastic surgeries and the horrors of aging and pregnancies on women’s bodies. I was tempted to shake my saggy bits in front of them. For whatever progress has been made in our society, the marriage of ageism and misogyny is alive and well. No one is likely to walk up to a woman of a certain age who looks her age and tell her what great shape she’s in. Women can and will be complimented on the shape they’re in only if they also look younger than they are. Women aren’t supposed to look their age, and if they do, if god forbid it’s remarked upon, it’s an insult. Why is that? Unless we’re in positions of power, women on the wrong side of the aging hill are largely invisible. If you are a woman in a position of power, you’d best look younger than you are, get those Botox injections or you’ll be pilloried and lose that position. The weird thing about all this? For a non-public, non-powerful regular gal, it can be a relief. Because as women, a compliment from a stranger can’t be taken without an assessment of whether that compliment is actually a dis or worse, a threat. I like to think of aging as nature’s invisibility cloak, woven of gray hair and gravity.

Practical Dreaming?

Perfection

The only thing better than a beach day is a beer on the beach day. Sadly, this photo is from last month, and I’ve only made it the beach a couple of times this year. Life.

A couple of weeks ago was the Mrs Fringe blog-o-versary. I celebrated in Fringie style by intending to post about running this blog for the past six years, but was distracted by life and there went that.

Here’s the thing about living with chronic bouts of medical mayhem. It doesn’t take much, doesn’t take long to have all the doctor, specialist, emergency room visits meld into one long this-is-the-entirety of life. And it isn’t knowing too much about what’s being said in medical-ese, it’s the sneaky tidbit that comes from behind you and smashes you upside the head with an anvil. Like knowing exactly which bathroom is likely to be the emptiest/cleanest at any given time of day at your most visited ER.

I was joking with one of my writing friends last week, and told her to send me a rejection email so I could feel like a person. She didn’t, but the writing gods were with me and I did get one from an agent a few days later. Sounds a bit crazy to say that, eh? Not just because rejection, but because querying, in and of itself, can often feel dehumanizing. But rejections can be ok, they’re a reminder of person-hood and productivity. And this was a lovely one, personalized, complimentary, and brief. Well, maybe it is a bit crazy to talk about good rejections, but it’s a crazy business.

In addition to commentary on all the political muck, there’s been a lot of industry muck going around recently on social media, stories of agents who aren’t ethical, etc. I follow, pay attention, but don’t say much because I have no personal experience; I’m unagented and have never been strung along by a shmagent. I’d like to say the latter is the result of my sophisticated New Yorker radar, but that would be nonsense. It’s luck. I’m no different than any other wannabe who plays with words, knowing exactly how slim the odds are, and yet investing hours and days and weeks and months, sometimes years, into creating fictional people and living in their worlds, because it could happen. I could get signed, one of my manuscripts could get picked up. I want to think I wouldn’t get suckered, but I can see exactly how and why that damned hope could override any warning signs.

Yesterday there was an interesting thread on the writer’s forum, it’s been discussed many times before, and I don’t think what it became was the original question/intent, but it was a plot vs writing thread. Which is more important to readers, likelihood of being picked up, that kind of thing. Yah, yah, the best novels have both, but most novels aren’t *the best,* and have one or two strengths, not perfection. I enjoy a broad variety of books, literary and genre (nonfiction, too), but if I had to pick one, I lean towards the literary. I can forgive/ignore a lot of plot holes for an interesting character. As a reader, that’s fine, there are always many fine novels to choose from.

As someone who plays with words with an eye towards publication, it couldn’t be a poorer choice. If I was smart–practical–someone who wanted to improve the odds of their dream becoming real, I would work on a tightly plotted thriller with an intern who saves cyberspace, or an epic dark fantasy with a fairy who saves the world, or beautiful, eternally young vampires giving fangtastic blowjobs to shapeshifters–while saving the world.

I’m not that smart. The New Thing I talked about in my last post? I’m still working on it. Took a week off because of the medical mayhem, got back to it the other day. I’m not a fast writer, but if I’m in it, I’m in it, and will average 1000 words every writing session. I’m all in with this angry, unlikeable and unapologetic older woman. This morning I woke intending to open the file and begin the next scene, but instead sat and thought about how thoroughly impractical this story is if I care about finding an agent. And/or being published. There went the day’s words, eaten by angst and shoulda woulda couldas.

There is such a thing as a practical dreamer. I wish it was me, but it isn’t. I I love this story–even though most of it is barely more than a shadow at this point, and I am having too much fun with this character. When my words aren’t lost to practicality and medical mayhem.

What the hell, might as well go all in on the angst:

What We Bring, What We Take

I’m back! Didn’t realize I was gone? I boiled the water, poured it over the tea bag and…no milk. I don’t know about anyone else, but I can’t even read a post without a fresh cup of tea, let alone write one. One trip to the grocery store, one half-hearted clean-out of the fridge, one load and start the dishwasher and two hours later, sitting in front of the laptop again. With tea. I caught the most recent headlines detailing How-American-Democracy-Dies out of the corner of my squint, considered changing what I would blog about, and nope. Not today.

While I was on hiatus from the blog, I kinda sorta started a book club. I didn’t necessarily realize it was going to become *my* book club when I floated the idea to one of the more active tenants in the building. She got it started by posting a notice to see who might be interested, chose a date for an exploratory meeting, and then somehow, I’m the one spearheading it. Me and my big mouth, eh? In all honesty, so far it’s been great. There’s a good mix of interests/ages/backgrounds/and perspectives being brought to the discussions, enough people showing up to keep things lively, not so many that it’s difficult for anyone who wants to to be heard. This weekend I was chatting with a building friend, and she said she was enjoying the book club in unexpected ways because of those different perspectives. I’ve never done one of these clubs before (I know, you’re all shocked to discover I’m not a joiner of clubs), but I have to say I likely wouldn’t be interested in one that didn’t involve a mix like this one does.

Spent the weekend drafting pitches for a twitter contest coming up that I will almost certainly not participate in. As mentioned the other day, I’ve been generally obsessing over whether or not I’m going to try querying (through usual means, no tweeting required) this manuscript I’ve got. Even if the stars align and someone offers me a contract, it will involve lots of rejections first, and then during, and then after. I have to decide if I’m ready for it. What does this have to do with the book club? Perspective. Anyone who’s ever queried anything creative is familiar with some variation of the phrase, “this business is subjective, not right for me, etc.” It truly is subjective, and that subjectivity doesn’t stop with an agent and/or editor. Ultimately, once you produce words and put them out there, subjectivity lies with the readers. Not just the obvious of whether or not they enjoy the story/are glad they spent time with it, but the how and what of that enjoyment, or satisfaction, or dissatisfaction, what stuck with them and what their eyes skimmed over. Their interpretation of the story.

One of my beta readers referenced hope as something she took away from my story. My instinct was to deny it, nope–not about hope. I don’t do hope. Really. Except it is, if that’s what she saw. Because maybe her definition of hope is different than mine. Maybe what gives her hope is different than what might give me hope. What many others think of as dark I think of as honest. Interesting. The bits that ground us, what we hold in common through the human experience. (Yuck, that sounds grandiose, doesn’t it?) What connects us isn’t always love. Sometimes it’s hunger. Fear. The rage of feeling, being powerless in a given situation. The desire to laugh. Or maybe just to be transported for a little while; for a chapter or an hour or 90,000 words, out of our own world and into someone else’s. But when we do, we’re bringing our story to theirs, as sure as the reverse.

Light at the End of the Tunnel

Unfortunately, our nation has jumped onto the tracks, and it seems we’ll be chunky pudding for the rats before that light helps us find our way.

I know I’m supposed to be positive and forward thinking, visualizing the world I want to live in, but I’m too busy gaping at the world I do live in. Every damned day feels like an assault, every news cycle (what are they, 11 seconds long now?) an emetic. Why does it feel this way? Because it is. An assault on our nation’s norms and values, an assault on our government, an assault on what could have been our future, an assault on the earth, an assault against people of color, and every day, new assaults against women–our rights, our autonomy, our bodies.  I didn’t participate in the #metoo campaign (on Twitter and Facebook) nor the #meat14. For some it made them feel empowered, more connected to share their stories and show the world exactly how widespread the issues of harassment and assault against women are. I know the stats, I know the stories, I know exactly how insidious and pervasive misogyny is. As long as we allow women to drive, keep their heads uncovered, and say that rape and assault are illegal, the powers that be can continue feeling superior to those other cultures. You know what else I know? This is a surprise to exactly no one, and is considered acceptable in our country.

Yes, that isn’t a typo, I said acceptable. Not to all, but to many. Too many. So acceptable that millions of citizens in the US decided to vote for a man accused of sexual assault multiple times by multiple women over many years– a man who we all heard discussing women as nothing more than toys and acquisitions in the basest possible terminology, bragging about predatory behavior, we heard this before the election–and still millions voted for him. Currently, Ray Moore is running for a Senate seat in Alabama. Ray Moore, such a fine and upstanding conservative with fine American values, well documented as saying homosexuality should be illegal, stating that there are communities in the US under Sharia law (I’d love to know exactly where), supporting transgender discrimination, and the old favorite of claiming Barack Obama isn’t an American citizen. Yes, that fine American was recently accused of preying on a 14 year old girl when he was a District Attorney in his thirties. And now more accusations from more women who say he molested/attempted to molest them when they were teenagers.

Am I shocked? Nope. Is there any woman in America who is shocked? I doubt it. So what’s the problem, you ask. The problem is there are still people supporting him, despite these now public and well supported allegations. Still elected officials supporting him. What’s a little molestation when tax cuts are within reach, right? And of course, we all know how 14 year old girls can be,nudgenudgewinkwink, it isn’t like anyone should reasonably expect an adult man to be an adult and keep his paws to himself.  There are not only constituents but elected officials literally saying they prefer an accused pedophile to a Democrat. His Democratic opponent, by the way, is Doug Jones. Jones is an attorney, and when he was a prosecutor, he successfully convicted 2 of the 4 Klu Klux Klan members responsible for the 1963 16th Street Church bombing. Such a moral dilemma there, eh?

Last night I watched an interview with another woman accusing Moore of having preyed on her as a teen. She was specific and credible, and made sure to say this had nothing to do with politics–she and her husband are Republicans who voted for Trump. My heart hurts for that young girl trapped in a car with a grown, predatory man, and for the woman who carries those memories and fears decades later. (Because that shit doesn’t go away.) But my heart hurts for all of us. My fear grows daily for all of us. This woman may believe she is rising above politics to speak up against a Republican politician, but apparently she was just fine with another accused predator sitting in the White House, because why? Because it wasn’t her? Or because fear and hatred of women, girls, and women’s sexuality is so ingrained in our culture that we don’t even know to protect each other?

Now, today, the number of credible accusers against Moore has grown to five, I believe. I guess five is the magic number for Paul Ryan and Mitch McConnell. McConnell has stopped snickering, and they are finally calling for him to step down from the Senate race. The governor of Alabama is apparently experiencing no such conflicts, and she is still saying she will vote for him. The Alabama State Auditor even twisted this into a neat bible story, babbling that this makes Moore just like Joseph, and the violated 14 year old girl is just like Mary. Can’t wait to see the episode of Veggie Tales that covers this.

This should all do wonders for the safety of women and girls nationwide, don’t you think? That we have an administration in the White House and elected officials nationwide who place the value of tax cuts for the uber-wealthy, ability to appoint backwards and unqualified persons for federal judgeships, and of course the rights of men to put their hands wherever and however they damn well please over the rights and safety of women.

So, be positive, celebrate that we’re turning over rocks and all these abusive, predatory, powerful and corrupt men are coming to light? Excuse my pragmatism (yeah, I know, you can call it cynicism) but I’ve heard this before, when everyone talked about how wonderful it was that ubiquitous video phones and the internet were allowing us to see the racism living in the nooks and crannies of our country. The sunlight didn’t kill it. The light allowed that shit to photosynthesize into a rooted, giant weed controlling all branches of our government with racism, bigotry, and misogyny.

I’m fucking traumatized.

 

25, 45, 65: Hut!

Sunrise, because who needs sleep?

The majority of those I know and those I follow on social media are rightly pleased with the appointment of a special counsel (and with the specific appointment of Robert Mueller) to investigate the possible (lol) collusion and coordination between 45’s camp and Russian officials.  This puts us on the road to possible impeachments, indictments, convictions.

There are also quite a few calling for the use of the 25th Amendment, which would be a way of removing 45 because he is literally unfit for office. I think this is the option that makes the most sense because, in my opinion, he is literally unfit and unable to comprehend the responsibilities, duties, and consequences of his words and actions. This doesn’t address the larger problems, which are all the things and people that put us here. As I said in my last post, nothing he has done or said is a surprise, he is who he’s always been. When this is all over, if there is even a pretense of democracy left, we will be here again, unless we address the underlying issues. Now. I’m just going to hit a few of the biggies, the most immediate concerns.

Fake news! This is a real issue. The FCC needs to stop worrying about who used the seven dirty words and instead get some regulation and oversight going over who can/cannot identify their TV/cable/newspapers/internet sites as news. If there aren’t fact checkers working overtime, they don’t issue corrections when they get it wrong, and they’re just spouting off whatever comes into their heads (yanno, like Mrs Fringe), they aren’t news and cannot call themselves news.

The GOP: Yup, every one of those fuckers has got to go. Not because I disagree with their tax plan, and not even because I think we should have nationalized health care, but because they knew. They all knew.  Each and every one of them knew he was unqualified, unstable, a proven liar, relied on unstable extremists as advisors, wore his many, many lawsuits like medals, viewed women as objects to be categorized and mauled, viewed immigrants as occasionally useful subhumans, admired dictators above democratic leaders, and strongly suspected Russian ties.  They supported him anyway.  They thought he’d make them and their buddies lots of money by relaxing and omitting those pesky regulations (correct), and likely they thought his inexperience and disinterest in the nuts and bolts would make him easily manipulable (big old incorrect).  These are not people who take their duties as elected representatives with any degree of responsibility, no true ethics.  Get rid of every last slimy one.  This includes the VP. He knew all of it. If he didn’t, he’s as incompetent as 45.  And yes, McCain too.  Moderate my ass. He opened the door to these loon extremists being taken seriously with Sarah Palin, and fell right in line behind 45 as eagerly as the so-called Freedom Caucus (formerly known as the Tea Party).

Us. By us I include those who supported and continue to support 45.  I can’t think of a single thing he stands for that I don’t despise, but. We are still the United States of America, fractured as we might be right now, so it is distinctly unhelpful to draw an invisible line with invisible ink and blame “those people.”  Sure, some of his supporters are unrecognizable to me as American citizens, with their hiding on compounds hugging their armories and preparing for Armageddon, but more of his supporters are regular Joes and Janes who hate. That hatred has festered and spread, cultured with ignorance and disinformation until there were enough to vote someone like 45 into the office of President of the United States. This didn’t just happen overnight–we’ve got that long history of hatred–that long history of bullshit pull yourself up by your bootstraps, and a more recent history where we’ve gone from admiring those who succeeded against the odds to glorifying the uneducated and vilifying those who do the work and get their actual degrees by studying. It happened when people said “W was a “C” student” like that was a good thing. Having Jefferson Beuregard Sessions, a man too racist to make it through to become a federal judge during the Reagan administration as our Attorney General didn’t happen overnight.  It happened with the acceptance of the privatization of the prison system increasing the flow of the school to prison pipeline for young men (and women) of color, it happened with the demonization and endorsement of bullshit studies re marijuana, it happened when Black Lives Matter was regarded as a nuisance instead of a necessity, it happened when we allowed racial profiling to flourish. It happened when we allowed police brutality, particularly against people of color, to continue unchecked without justice.

More us. It’s time to stop fantasizing about the only acceptable President being the Messiah. Barack Obama was an excellent President, but he was neither perfect nor magical.  This made his decisions untenable to many on both the left and the right. Maybe it’s just me, but isn’t that just a little bit completely batshit crazy?

We are in trouble. We are in trouble on the world stage, and we are in trouble within our own borders. The American social fabric isn’t merely torn, it’s ragged. I don’t believe a patch will hold, we have to rework these threads.

Zero to Hero: Or Not

I know, I know, I haven’t been around.  First I was writing, which felt shockingly excellent.  Then I got sick, the flu maybe, which sucked. Naturally after I got sick, Art Child got very sick, and the battery for my camera has died, which means no new photos, and before I can blink, weeks have gone by without even considering a post, and a whopping dose of the blues, which means  you didn’t want to hear from me anyway. Trust me.

The other day I was web surfing, and came upon what looks to be a reputable writer’s conference that will be here in the city this summer.  Sure I haven’t opened the Mess-In-Progress in weeks, I’m not quite sure how I’ll work out the money or the logistics but ooh!  I’m considering it.  Maybe it will be motivating. Inspiring. Humbling.  Humiliating. Yeah, maybe I’ll put that thought to the side for now.

Why am I blogging today? I’m not sure. Maybe because I feel like howling at the universe, but apartment life means no howling allowed. This is not a mom blog, or a special needs parenting blog.  I do talk about my kids a fair amount because they’re a huge part of my life, but as I’ve said many times, Mrs Fringe is my spot to be me–all of me; the good, the bad, and the wacky.

I know Jimmy Kimmel did a beautiful job talking about all of this the other day. Heartfelt, honest, a perfect blend of hope and honesty, and I truly thank him for using his platform to talk about families who don’t have millions tuning in to their words, have millions cheering them on and praying for them. Even I teared up as I watched. He had a layer I don’t have anymore, that newness, that shock of how-did-I-get-here?

In parenting, there are moments that make your heart stop. I like to think I’m pretty good in moments of crisis, it’s afterwards, when you have time to think and breathe, when I’ll feel it most.  But yeah, there are those moments where no matter that part of your brain is telling you to move, to speak, to take action, to take a breath…the lobe that’s in control in that one moment is frozen.  I don’t know about anyone else, but for me, it hasn’t always been a huge crisis that prompts this, it’s the neat and perfect dovetailing of implications, suddenly unavoidable.

“Mom, the dark’s been darker than usual.” My heart, my brain, my fucking everything stopped when I heard that. Of course I needed to hear it, I need to know this, but I don’t want to. For the past several months, we’ve been seeing more specialists and adding meds to deal with the issue that’s come up with Art Child’s eyes. I can and will do everything possible to preserve her vision. We’ve been doing everything possible, knowing the odds are ugly, to say the least.  And then I heard that statement.  And the next day she came home with a different edition of a book she’s been reading because “the letters are bigger.”

And then I went online and read about the latest round of “How the GOP is trying to kill the citizens of America and torture the most vulnerable.” Excellent.  Even better, the individual statements of Reps and 45 supporters saying things like people who live “good lives” and “do things the right way” should pay less than those with pre-existing conditions. As another med-needs-mom friend of mine put it, yeah, if only our fetuses hadn’t been drinking and whoring while in the womb, they wouldn’t have those pre-existing conditions. If you don’t have experience with this stuff, let me say sometimes I think it’s a freaking miracle that the majority of babies are born healthy and neuro-typical, because yes, there are that many things that can and too often do go wrong. Another pro-tip for you, everything is genetic. Everything. And most of us will, at some point, develop something considered a pre-existing condition, because it’s coded into our genes. Or we’ll have an accident that will have lasting repercussions. Or old age.

So on one side we’ve got the people who are totally cool with anyone with treatable health issues dying because they can’t afford health care. On the other side (and sometimes, oddly enough, there’s crossover) there are the people who know they and their family were really lucky with the genetic jackpot, and they say things like, “I don’t know how you do it. You’re a hero. Your child is a hero.” Now, I get the whole hero thing when you’re trying to explain to a very small child who’s ill. “You’re a superhero! You’re going to kick cancer’s butt! Slaying cystic fibrosis! Show those seizures who’s boss!”  And I know there are some medical needs parents who find it helpful to think of their children (maybe even themselves, but I haven’t heard that regularly) as heroic in the fight against *insert cause(s) here*.  Or they believe they/their children were chosen. I’m too cynical for this, and frankly, it neither makes me feel better nor gives me strength to make the next phone call, agree to the next med that includes “may cause death” in the list of side effects.

I’m a regular old gal. Really. If you walked past me on the street, well, you’d walk past. Normal. Regular. Average.  You might notice Art Child because she’s fabulous and beautiful, but that might be my bias talking.  You’d probably walk past her too. And my boys. Man boys, who do indeed have ten extra levels of strength, calm, and compassion because they grew up in a house with medical needs.  But you’d walk past them. And that’s all okay. I love a good cape, and so does the girl, but I feel no need to slap on a mask and gadget belt. I just don’t want to be a villain, either, for wanting the best possible chance for the best possible outcome for my child.

 

Magical Thinking

Reality or Magical–What do you see?

Yes, it’s been a while.  Again.  First I was working on a post that’s still sitting in my drafts folder because I couldn’t beat the words into sense, and then life.  Blah blah, medical mayhem, lots of waiting rooms and doctor’s offices, suffice it to say I’m pretty sure any vision test I take from this point forward is null and void– I’ve seen so many while sitting with my girl, I’ve got every chart memorized. Thank you, my fellow Dems/Liberals for being diligent and insisting on being heard about how disastrous the proposed health care bill was, and thank you, GOP, for being in such a mess that you’ve had to put your we-want-you-to-suffer-painfully plans on hold so I can keep doing this.

And oh yes, I’m writing again.  A secret unless you a) read this blog post or b) follow my twitter feed (which you should, because on the thrice annual occasion that I remember to log on, I retweet with the best of them).  It might be more accurate to say I’m rewriting, because this isn’t a glittery new project, this is the rusty old wreck I tabled a few years back that I’ve already talked about reworking.  I figure I *might* be able to use half of what was there, and overall I don’t yet know if I’m taking something that was meh and making it better, or taking something that was meh and puking weird and unidentifiable bits of acid all over it.

Takes a bit of magical thinking to write a novel, regardless of genre.  More than a bit if you’re writing with an eye towards publication.  If you’re looking at trade publishing (as in–not self-publishing) I’m pretty sure the odds are 843,000,000,000 to one.  A couple of years back I blogged about the need for big brass ones in order to believe this could be done.  Despite regular polishing of my metaphorical testicles, here I am, still one of the unwashed and unpublished wannabe novelists.  Clearly, in addition to working diligently on the MIP (Mess in Progress, since I’m still unsure if I can call it a Work in Progress) the answer is to sprinkle some eye of newt into my word cauldron, maybe wave a bit of sage, and wear my very pointiest hat.

Whatever we’re wishing for, I think most of us engage in a bit of magical thinking.  Like, say, this woman.  This is a hell of a story, an excellent snapshot of why supporting 45 and his merry band of fascists was a bad idea.  She’s an American citizen married to a not-quite-undocumented Mexican immigrant.  She voted for our current regime, because she thought they only meant they would deport the “bad ones.”  Her husband wasn’t in hiding, checked in with ICE when he was supposed to, gainfully employed, paid taxes, legit, provisional Social Security number.  Needless to say he is currently in jail awaiting deportation because ‘Murica.  I’ve seen a lot of people comment on this story, some gleeful at her comeuppance, some who feel sorry for her.  Me? Shrug. I take no pleasure in what has to be a painful and terrifying experience for her husband and their children, but I don’t feel sorry for her.  He was very clear about his beliefs and vision, started his whole damned campaign with racial slurs about Mexican immigrants. This is an example of dangerous magical thinking; belief that no one can see you behind a clear shower curtain, that it’s ok and safe to wish harm on others; ok to strip rights, dignity, even humanity because other.

There were never any real plans offered by this President and his administration regarding how they would make things great. The closest they came to concrete plans involved who they were going to vilify, and how he could do whatever he wanted while keeping his supporters and increasing his net worth.  His net worth, not yours.  I’ve said this many times already, once you say it’s okay to dehumanize this group and that group, it’s a guarantee that more groups will be added to that list, and yours will surely be added sooner or later.  I hope no one reading this is surprised and hurt to discover this, but 45 and his cronies don’t see you as a human being.  You were a vote. If you voted for him, he’s done with you, if you didn’t, you never existed in the first place. Let’s go back to that disastrous bill, HurryUpandDieCare.  This is from a meeting on Thursday night, with a no holds barred attempts to squeeze votes out of those who thought it was still too generous a plan.  “Forget about the little shit.”  The little shit is you, me, and the woman from Indiana whose husband is sitting jail.

A little magical thinking might carry me through months of work on this MIP, enough to (hopefully) craft a cohesive and interesting story, maybe adding the tears of a baby dragon will get me through the querying process. It won’t get me published. Magical thinking got 45 and company into office, it won’t make them responsible, compassionate, or skilled–and it surely won’t protect us from the damage.

One of Those Days

Byron and Ramiro, by John Sonsini, 2008

Byron and Ramiro, by John Sonsini, 2008

Yesterday was just another one of those days.  You know the ones. Where you sit in kiddo’s specialologist’s office and they’re telling you news you don’t want to hear and their voice gets all tinny and small and you feel all tinny and small but part of your brain Must Keep Up Appearances so it engages your mouth and you try to sound like a Reasonable Adult Human Being by asking the right questions and taking notes as they tell you about two other specialologists that must now be added to The List of necessary ologists for said kiddo even though their words feel like a spray of pellets shooting holes in your tin self. Yeah, one of those days.

I haven’t actually read any news articles or watched any clips since leaving for the doctor yesterday.  This morning I scanned the headlines, and I didn’t miss much. Just another day with this administration, apparently gearing up to declare war on Iran, Mexico, China, and Australia (?!).  And, needless to say, continuing the war on the American People, specifically Democrats, women, people of color, Muslims, the wrong types of Christians, children, those who live in poverty, unions and union members, and anyone who mistakenly thinks Holocaust Remembrance Day and Black History Month aren’t about our Fearless Tweeter.  Did I miss anyone? I’m sure I did.

The other day I blogged about us, who “us” is, and the need to stop pretending that the supporters of our administration and these new policies aren’t part of us.  Indulge me today, while I talk about the GOP for the same reasons, just for a second. They aren’t going to save me, you, or anyone other than their own hides and bank accounts. Reasonable Republicans.  I believe that used to be a thing, much as I might have disagreed with them.  Now they don’t exist, not those in office, anyway.  Sure, a few make some noises here and there, statements mumbling disagreement, but ultimately, they’re staying right in line with our everything old is new again White Supremacist sanctioned policies.  Noises and mumbles don’t amount to more than a fart in a breeze when two of the horrific Cabinet picks were forced through despite the Democratic Senators’ boycott.  When there’s any one of them willing to support that horrific choice for Secretary of Education.  Thinkofthechildren my eye. When they ignore shady ties to Russia to clear Tillerson. When they support a well documented racist for Attorney General. When they quietly allow the firing of an acting Attorney General for putting the People and the Constitution above the administration. When they don’t say a word about the many active conflicts of interest. When suddenly Putin is someone to be admired, a role model. When legal and peaceful dissent and freedom of the press are overtly threatened.

What’s already occurred and occurring is horrific. I don’t have to read every word of every article every day to know this.  But I don’t get to ignore what’s going on in the country and world around me.  We may want to pretend we can just keep our heads down and it won’t effect us, but it does and will, in ways large and small.  Like imported goods being taxed so high we can’t afford fresh fruits and vegetables. Like losing healthcare. Like losing doctors to bans and deportations. Like losing research scientists for the same reasons. Like losing public schools. Like losing special education rights completely. Like more job losses because of hiring freezes, tech companies going to friendlier countries.  Like losing the right to practice whatever religion you choose. Or not. Like losing the right to vote because of increased gerrymandering. Like losing the right to choose, including situations of rape, the mother’s life at risk, and non-viable pregnancies.  Like losing the gains made in legalizing medical marijuana.  Like losing LGBTQ rights. Like losing all of our damned Allies in the world we share because they’ve been insulted and dismissed.  These are just a few of the very real, potential losses for all of us, without even looking at the more dramatic and yet suddenly also possible scenarios. The only question we have now is will this shitshow result in disaster or complete annihilation.

So, stop. Stop waiting for these imaginary ethical Republican senators and congresspeople to step up. I used to believe the next specialologist would have The Answer, maybe even The Solution, to my girl’s ever-increasing medical needs, but it became necessary to face reality and stop getting my hopes too high.  Still necessary to treat each issue as it arises, even necessary to hold a bit of hope in my back pocket, but for the sake of sanity and reasonable functioning, blind faith that everything will be ok and will go back to “normal” shortly is foolish.  As foolish as expecting the GOP to step up, or thinking our country hasn’t been fundamentally, irrevocably damaged.