friends

Second Hand Life: unsolicited advice

Coat/Wardrobe rack

Coat/Wardrobe rack

Yes, messy apartment, try to ignore the clutter–I do.  Everyone knows I’m waiting to hear about the larger apartment.  In the meantime, I know it will need some work before we can move in, and that means paying on two apartments.  Obviously, I want to minimize the hemorrhage of funds.  I’m not buying anything (what if it doesn’t come through?), but my current place is hung with paint swatches and little floor samples scattered in different lighting.  My kitchen table won’t fit in the new space, and Art Child needs new furniture, so we’re cyber-window-shopping.  We like to look at the web sites for the out of budget stores, and get ideas from those.   One thing we saw that we both thought was a great idea was a wardrobe rack for her bedroom.  The site we saw this on is charging $300. For a coat rack! It’s ok, we aren’t buying anything, just looking.

Yesterday afternoon we splurged and went for tea at our favorite place, lots of fun.  Afterwards, we made our way to the thrift store.  I rarely find anything in there, I think you have to be more of a shopper to do well.  But then, there it was. A perfectly good coat rack.  $30.  How could I not? It’s on wheels, so we walked it home.  Of course, those wheels aren’t meant for city streets, so we lost two screws by the tenth block, and the bottom rack was now perpendicular to the top.  Five more blocks, found a hardware store, where the manager got us two new screws and fixed it. $1.19

Between the find and a conversation with a writing friend, I’m thinking about this second hand life.  For the record, I’m a big supporter of recycling and reusing.  In its way, Astonishing is recycled.  Do you know it’s my fourth completed manuscript?  I want to kick myself, each and every day, feeling like I wasted so much time.  First I felt like I had plenty of time ahead of me to sit down and write that Great American Novel.  Then I started, but practicality (also known as fear and insecurity) had me write romances first.  Romance isn’t easy, or an easy market, but it is a larger market, a bit more open to newcomers.

When I wrote Wanna Bees (third manuscript) it was an attempt to blend my two loves, reefing and writing.  It was also my first experience writing something close to magical realism.  I loved it.  Sent a small number of queries, a couple of requests–rejected–and realized I didn’t care enough.  So I recycled.  Both Wanna Bees and Astonishing begin with the death of a mother (within one year, I lost my mother and learned of the death of my birth mother.  Writing may not be as effective as traditional therapy, but it’s easier on the budget.) both open in New York, both main characters have sisters they’re close with, both have magical realism.  But very, very different books.  I had fun writing Wanna Bees.  I love Astonishing.

Will it get published?  I have no idea.  Is is good enough? Good enough is the underlying theme in all of my manuscripts.  I think so, but I have researched enough, listened to and had enough conversations with the pubbed and unpubbed, agents and editors, to know good enough isn’t always enough.  There are other considerations.  Some of the mistakes I’ve made are part of the process, the only way to learn (unless, maybe, you go the MFA route, have real life mentors and such, but even then I suspect those craft mistakes need to happen).  But waiting so long to take myself seriously?  Avoidable.  Waiting even longer to write a manuscript I really wanted to write?  Avoidable.  This is where I can and you should say, “that Mrs Fringe is a hard-headed woman.”  It’s okay, Husband says it all the time.

Everyone who writes has their own process, what works for them.  Personally, I don’t believe in writing only for yourself if you’re interested in publication.  I write with an eye/ear towards what I think would be interesting to others, intrigue them enough to keep reading.  But if  you want to do this writing thing, if you want to be published–be just hard-headed enough to do it.  Don’t wait for the right time, don’t write what you think is the more practical choice–just because it’s more practical.  Writing fiction isn’t exactly practical.  I saw plenty of items in the thrift store that were still impractical and out of budget, second hand or not.  But when it’s in budget, right in front of you? Grab it and fix the wheels when you get it home.

http://www.youtube.com/watch?v=2ojNhtQOsHk

Look At Me, I’m A Person!

Party of one

Party of one

This is my morning.  Every morning.  I begin each day on the terrace with my coffee and my phone for a morning email check in with a friend–“ready?”– who lives many states away.  Whichever of us is awake first sends the first email and cybercup.

But there’s a new and important difference to this little tableau.  Can you guess what it is?  Until yesterday morning, I didn’t have a real grown up sized chair, or this cute table.  That’s right, for the past seven years I have woken up anywhere between four and six AM, gone onto the terrace, and sat down with my coffee and phone, pretty much on the floor, no table.

What do I mean by pretty much on the floor?  This.

See the difference?

See the difference?

Yes, I’d been using the low-slung reject beach chair–rejected for the beach because the back can’t be adjusted/reclined.  Why, Mrs Fringe, wasn’t your butt cold sitting on that in the winter months?  Yes, yes it was.  Mrs Fringe, didn’t that aggravate your back over the past year, when you’ve been dealing with the back pain from Satan?  Yes, yes it did.  When I first moved into this apartment, a little patio set went on the list.  But yanno, the list is long, and things like a real outside chair for myself fall way down to the bottom of the list of needs and wants that never stops growing.  We’re still waiting for an official *go* on the larger apartment, but it seems like it is going to come through, and this would push a patio set that much further down the list.  Because budget.

Initially, I didn’t really mind.  First of all, how could I complain when I actually had an apartment with a terrace?  And you all know how much I love the beach, so I would sit in my little chair, close my eyes, and pretend I was on a beautiful beach somewhere else.

When Mr Smitholini first saw this, years ago, he laughed and told me he was going to bring me the sandbox from when his kids were younger, so I could really live the dream.  Not a bad thought, really.  It became a running joke, every time I spoke with Mrs Smitholini on the phone, every time they came to visit.  They don’t come very often.  Let’s face it, driving and parking in the city sucks, we are 8000 people and creatures in a two bedroom apartment, and their family of seven squished around the dining room table in addition to my family of five creates an, ummm, cozy dinner.  They have a spacious and beautiful home in the suburbs, so it’s more frequent that we go to visit at their house.

Until about two weeks ago, it had been a couple of years since they were here.  Life, work, twelve people’s schedules…not so easy to coordinate.  But then they were here, in dress clothes because they came over after a family function.  Mr Smitholini wanted to sit on the terrace to have his cigar, and I, the hostess with the mostest, offered him the beach chair.  He was a good sport about it, Mrs Smitholini and I sat on the ground, but, ummm, suit + beach chair + middle aged bodies + middle of Manhattan = not so fun.  We went to visit them two days ago, and Mrs Smitholini had this present for me.

A real, grown-up patio set.  Two (matching!) chairs and a table.  One of her kiddos even put it together for me before we got there.  Squee! It isn’t just the furniture that’s a gift, the past two mornings have been a gift to my back, as I settled with my coffee and phone, watching the sun rise.

I don’t consider myself an outdoorsy gal, but I need to start my days like this.  Sun, rain, or snow, I have to be outside.  My beach house will remain a fantasy, but I figure out what I can to get my imagination there with the pesky reality of my body being here in the city.  Time on the terrace, forever friends,  and soon I hope, another little slice of the ocean in a glass box.

So here I sit, on a grown-up chair, like a real person on the terrace.  My laptop even fits comfortably on the table, coffee cup to the side.  Are you ready for coffee?

 

I am Broccoli Rabe

Broccoli Rabe

Broccoli Rabe (Photo credit: cbertel)

Maybe not me, but my writing.  I think.  Hell, maybe it is me.

Broccoli rabe, kalamata olives, vinegar, hot peppers, capers, just about any type of cheese–the stinkier the better.  I’ve never tasted anchovies.  When I was younger, no one I knew ate them, and by the time I realized they were probably a food I’d enjoy, I was long a vegetarian.

Don’t get me wrong, I don’t think I’m a “foodie,” there are plenty of basic, simple comfort foods that make my list.  Oatmeal with tons of salt and butter, cheetos, pb&j.  Yes, peanut butter–the real kind–no additives.  I don’t know about your house, but in my house we go through gallons of it.  Nothing says comfort like a sammich.  Mrs Fringe ❤ bread.  But if I had to choose my two favorite sandwiches, one would be a lightly toasted extra sharp Irish white cheddar with sour pickle slices on sourdough, and the other would be chèvre, kalamata olives, fresh dill and sliced cucumbers on baguette.

Like anything else, these foods are only good if they’re fresh and prepared well.  Same with writing, words and stories.

I enjoy strong flavors, strong opinions, strong words.  Things that make my tongue and my brain tingle.  Not everyone agrees, not on their plates and not on their book shelves.

Not everyone likes the same books I do, the same authors.  Not everyone *gasp* enjoys my stories.  But those that do, really do.  Kind of like those that have a taste for broccoli rabe.  It doesn’t mean it’s a “flavor” that’s inherently bad or good, individual tastes vary.  It occurs to me as I type, this might be seen as a cryptic message about rejections.  Nope.  Still waiting, haven’t heard yay or nay on the fulls that are out.  Just flagellating myself while I wait.  Umm, I mean, thinking.  Just thinking.

It’s Friday, Friday Night Madness tonight.  Fatigue is coming over, we’ll have dinner, one beer each, and laugh.  Art Child will show him her latest sketches.  We’ll cluck and tear up and sniffle a bit as I give him the update on Big Senile Dog (kidneys–I’m waiting on more test results), and he’ll fill me in on the rapidly declining health of his Big Senile Dog, and then I’ll read him the next couple of chapters in Astonishing–it’s become our irregular routine.

You’re welcome to join us.  I’m thinking basic pasta tonight.  I make a mean puttanesca sauce–no anchovies.  If you don’t like it, I can order a pizza.  If you don’t like pizza, well.  Maybe Art Child will share her Easter chocolate.

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Let Me Call You Sweetheart

That’s what I think of, when I think of Valentine’s Day.  Remember that scene from The Rose?  Bette Midler playing a Joplin-esque character, breaking down on stage as she tries to croak out Let Me Call You Sweetheart.  That and the fact that St. Valentine is the patron saint of epilepsy.  Ya caught me, a true romantic.  I’m also allergic to roses.

flowers for Flower Child.  We need the pop of color during this endless stretch of gray and snow.

flowers for Flower Child. We need the pop of color during this endless stretch of gray and snow.

Husband is away, so we won’t be doing our normal Valentine’s Day celebrations.  Oh wait, we don’t normally do anything.  I don’t think we ever have done anything special for VD.  We just aren’t that couple, never were.  We’re both bad at stuff like that, cards, remembering specific dates, anniversaries.  How many years are we married, Husband?  I think it’s 43,000 years, but I could be off by a year or two.  We’ve known each other for-ev-er, were friends for a long long time before anything else.

I think without getting into the realm of the spiritual, after my insane devotion to my children, I believe in the healing and strengthening powers of friendship more than anything else on earth.  Friendship can come from our significant others, siblings, children, parents, classmates, workmates, online, any of the many places we humans interact. I’m very lucky to have some wonderful friends in my life, and wish that everyone could say they have at least two great, long-term friends.

Too many people are out there feeling they are alone, and “holidays” like this one seem to magnify those feelings of loneliness.

So it feels fine for Husband to be off doing his thing on Valentine’s Day, and for me to not-celebrate by having Fatigue over for Friday Night Madness.  Because…friendship.  In honor of low days, snowstorms, downwardly mobile lives and overly commercialized holidays, I decided comfort food is in order for tonight.

That’s right, mac n cheese.  My version of macaroni and cheese involves whatever cheeses I happen to have in the fridge.

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Feel free to come join us at the cyber table, Fringelings, I’ve even got a few beers on the terrace.  Happy Valentine’s Day.

 

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Pick-Up

You know those friendships.  We all have them.  Pick-up friendships.  The people you don’t see, or don’t speak to, or don’t see an email/post from for months and months, and then when you do it’s like you saw them last week and it feels so…good.  They are the sweetness in life that leave us smiling, seemingly small but full blessings within the frustrations and drudgery of day to day life.

I saw one of those friends this evening, Honor, and in fact I think it was from him that I first heard the expression, of friendships being like a game of pick-up basketball you find on the public playgrounds of the city.  Just walk onto the court and start playing.  He was a teacher of Man Child’s years ago, and over the years became a friend to Man Child, a friend to all of us.  I call him Honor because he is one of those rare people who lives his principles, always kind, always thoughtful.  He was raised by a mother who believes you never show up at someone’s house empty handed.  Old fashioned?  Yup.  Unnecessary?  Absolutely.  And completely lovely.

A frigid, snowy night.  Could there be a more perfect gift?

A frigid, snowy night. Could there be a more perfect gift?

After a little catching up, Honor, Man Child, and Miss Music left to go out for dinner.  They went to a local restaurant that’s about to close.  Priced out of the neighborhood after more than thirty years.  Oh New York.  I’m sorry I won’t get the opportunity to go in before they’re gone, but I didn’t realize they were closing in time to plan.  Ah well.

I didn’t get to have my favorite sandwich one last time, but Flower Child and I were treated to our favorite live music.

Thank you, Nerd Child!

Thank you, Nerd Child!

Now all is quiet.  I’m just watching the snow coming down, waiting to hear if the public schools will be closed tomorrow.   Thinking about the WIP, turning a few ideas over in my mind.  Tomorrow I write.  And continue avoiding the mirrors, I got my hair cut today.  Blech.

It's coming down hard and fast, a snow day is feeling possible.

It’s coming down hard and fast, a snow day is feeling possible.

 

 

All the World is Waiting For You

Here we are, post Christmas and pre New Years and I have a confession to make.  I had a fabulous Christmas.

Here I am, just like Wonder Woman.  Except for the boobs.

Here I am, just like Wonder Woman. Except for the boobs.

Excuse the pj’s.  See those fingerless glove thingies?  They’re warm, and fabulous, and I loooooove them.  Actually, when it comes to the stuff of gifts, I kind of racked up this year.  I feel embarrassed by my good fortune.  Everything I received was something I’ve wanted for a long time, or would have wanted if I thought of it, and I’ve got a goofy grin looking at the boxes and bits of wrapping that still litter the living room.  Fringelings and Husband, also happy.

As you can tell, I'm not one of those who obsesses about the placement of each ornament.

As you can tell, I’m not one of those who obsesses about the placement of each ornament.

As I get older, I’m getting better about letting go of things that don’t matter.  I used to spend way too much time and effort picking just the right tree.  This year we gave Nerd Child money and sent him to the corner to pick one.  He is not one to obsess over these things.  Guess what?  It was absolutely fine.  Decorated and hung with our old familiar lovelies, it was more than fine, it was a perfectly Fringe-y Christmas.  Ornaments from places we’ve visited, different times in our lives, gifts from friends and family.

A handblown ornament I loved was knocked off by one of the beasts.  Smashed.  I wish it hadn’t, but it’s ok.  Here I am, proof of emotional maturity.  We won’t mention the huge meltdown I had when I didn’t see my cake stand when I woke up in the morning.  Guess I’m a work in progress, after all.  Turns out Man Child put it away in a place I didn’t think of, to protect it from Big Senile Dog, since he doesn’t seem to realize rules still apply, old or not.

She's another favorite.  That's the bonus of choosing smaller trees, I only hang favorites.  :)

She’s another favorite. That’s the bonus of choosing smaller trees, I only hang favorites. 🙂

During the day on Christmas Eve I was able to run over to my friend’s apartment and bring cookies for her and her husband.  These are two of the kindest, smartest, most generous people I’ve ever known.  They gave me a lovely gift, but having them in my life is a gift unto itself.

Normally, I make a big breakfast/brunch on Christmas Day (mostly prepped the night before), and we spend the bulk of the day in our pj’s chilling, playing with new stuffs, and an open door for whatever friends and family would like to drop by.  Big Senile Dog and Little Incredibly Dumb Dog plant themselves next to the table, just waiting for something, anything, to be left unattended.

She scored a tissue, he's holding out for bacon.

She scored a tissue, he’s holding out for bacon.

This year Man Child did all the breakfast prep on Christmas Eve.  Good thing, because I hurt my back and just could.not.stand. for any more kitchen prep.  Would have turned into a throwback to the Christmas mornings when I was pregnant and on bed rest–Christmas bagels.   After the opening of the gifts, 8 gazillion cups of coffee, and breakfast, we took our time and then went to have dinner with Mr and Mrs Smitholini and their crew.

It’s been a long time since we were all together.  And by all, I mean the five of us and the seven of them, plus Mrs S’s brother.  Why yes, Mrs Smitholini and I were both quite, ummm, fertile in our younger years.  Our kids spent a lot of time together growing up.  We used to trick or treat together every year, when the Smitholinis lived in one of the outer boroughs, and I have a photo of the crew on their front steps, in costume, for about 10 years straight.  Every year there was at least one more.  At this point the age range is from 12 up to 22.  Most not really kids anymore, all with their own lives and schedules, and a rarity to have all in one place for the day.

I hope everyone had some peace and laughter during their holiday, whichever holiday you celebrate.  A moment where you felt love, kindness, and general silliness.

So yes, it was a beautiful day, peace and laughter and thankfulness.  I would appreciate it regardless, but we had a particularly stressful few days beforehand.  There was a glitch with our health insurance that is about 1/2 an inch from complete disaster for us, and then discovered someone hacked into our cell phone account and added 6!! lines and purchased 4 iPhones on our account.  Life, keeping it real.

I woke up early today and spent an hour and a half scrubbing the stove of the blackened, greasy remnants of the past weeks’ cooking and baking frenzy.  I should be working on Astonishing right now, but I’m a little stuck.  Again.  I hoped the fumes of bleach and Easy Off would trigger some ideas.  No such luck.  I’m thinking about New Years, goals for 2014, but not quite ready to write them down.

Not exactly Wonder Woman.  Not a wonder, not changing the world, no satin tights.  But all in all, not a bad close to 2013.

Wonder Woman Covers

Wonder Woman Covers (Photo credit: jooleeah_stahkey)

Bad Influence: A Feel Good Moment

friends

friends (Photo credit: ROSS HONG KONG)

You may be surprised to learn this, but I don’t have a lot of friends.  I know, I know, it’s shocking.  But the friends that I have, I’ve had for a long time.

Two of my oldest friends are a married couple I’ll call Mr and Mrs Smitholini.  We met in Brooklyn, long before they were godparents to my children, before I was godmother to theirs, before they were Mr and Mrs.  Mrs Smitholini and I hit it off as soon as we met.  Me and Mr Smitholini?  Not quite as instant a friendship.

Mr Smitholini is old school.  One of those guys who was born old school–before it was skool.   He thought I was a bad influence on the future Mrs Smitholini, with my peasant skirts, tie-die jeans, and loose, wanton ways.  “Whaddya mean ya write poetry?  I’ll give ya a poem.”  We had fun, though–when we weren’t each trying to convince the other (s)he was being a bad influence on (the future) Mrs Smitholini.  A lot of fun.  I have two other friends I’ve known longer than Mr and Mrs S.  We’ve all spent a lot of time together over the years.  I was maid of honor at two of their weddings, they were bridesmaids at each other’s.  I, of course, was the hussy who got married in Vegas–no bridesmaids.  A lot of laughter over the years–most of it completely sober, too!  And yes, tears.  Weddings, funerals, christenings, baby showers, wedding showers, Sunday dinners, painting each other’s homes, changing diapers on each other’s children and general tomfoolery.

Admit it, ladies.  There’s nothing like the relationships you have with your long term girlfriends.  Gab, gossip, and gorilla warfare over a pot of tea.  Or perhaps in the very, very distant past, banana daqueris.  But we won’t talk about that night.

There’s this amazing, mushy joy in seeing our children play, hang out together, and enjoy each other, as well as their “aunts and uncles.”

The four of us (Mr and Mrs S, Husband and I) are friends.  Not just got used to each other’s Mr/Mrs, but friends.  Mr Smitholini and I each saw what Mrs Smitholini saw in the other one.  So I’ve counted him as one of my friends for many years already.  And the Mrs?  I can’t imagine life without her.  We’ve lived close, we’ve lived far, our lives have changed.  Day to day for each of us is busier, we no longer spend hours on the phone every single day, but she’s still the first one I call.  We don’t get to see each other in person on a regular basis anymore, but when we do, it’s like we were together the day before.

Some of our running jokes have changed over the years.  At this point, Mr S busts my balls asking when I’m going to dye my hair (if I look old, well, that makes him…not as young–Mrs S has excellent, youthful genes that have produced remarkably few gray hairs), and I tell him I’ll go platinum blonde as soon as he gets plugs.

Husband and Flower Child and I went away this weekend.  We went North again, our timing as impeccable as ever, we missed the fall foliage, but what the hell, right?  Mr and Mrs Smitholini said they would join us.  We planned to meet at the motel, no plan to arrive at the same time.  Halfway up, we were caught in a major traffic jam.  Mr S called.  They were also stuck in a major traffic jam.  What road are you on?  Same road.  Where are you?  Turns out we were 2/10s of a mile behind them, same lane.  We had stopped for dinner, they had stopped for coffee and donuts.  We were wishing we had coffee and donuts.  They moved into the  lane next to us.  And shared.

Want one?

Want one?

Yup, Mrs Smitholini  passed the box out her passenger side window into Husband’s driver side window.  Turns out Mr Smitholini was right all those years ago.  I have been a bad influence on her.  She would never have done such a thing when we met, way back when.

What could have been a miserable trip filled with why-did-we-do-this, and we-should-have-left-earlier/later/yesterday never was instead a road trip of laughter, courtesy of our cell phones and mutual bad timing.

When we got to the motel, Mr and Mrs S went upstairs before us.  We got to our room, they were standing in the doorway.  The desk clerk had mixed up our room keys.  So while they waited for us to get upstairs, Mr S closed the window in the room so Flower Child wouldn’t be cold.  We swapped keys, and then had a midnight snack together, courtesy of Mr S.  Sparkling wine, red wine, cheese, crackers, other assorted goodies.  And then we laughed until 2AM.  The only time I’m awake for anything other than insomnia at 2am (in the past 15 years) is when I’m with Mrs Smitholini.  Maybe we’ve had it wrong all these years, and she’s a bad influence on me.

 

Wanna Get a Belly Fulla Beer

Ok I’m not talking about Saturday night, I’m talking about Friday Night Madness.

Generally, Husband is off on Fridays, and he orders pizza with Flower Child while I go out with Fatigue.  For this month, Husband is working on Fridays.  Oh NO!!  I need my hour and a half of Friday Night Madness.  It’s like a get out of jail free card, only it’s bitch and moan to my heart’s content, or just sit peacefully with my beer while Fatigue moans.  Plus all my favorite waitresses work on Friday evening.  Blargh.

The other day, on Facebook, I was in a discussion with a group of friends about soups.  Try not to be jealous of my glamorous New York lifestyle.  One friend mentioned onion soup made with a dark beer base, and it’s been on my mind ever since.

So, I called Fatigue and asked him if he’d like to come here instead of meeting at the bar.  Flower Child was very happy.  So happy she was *gasp* willing to not have pizza for dinner.  On a Friday.  This may not sound like much to you, Fringelings, but in our world that is huge.  She adores Fatigue and hasn’t seen him in quite a while.  Thumbs up.  Bought beer, bought onions, Comte, baguette, all good to go.

The weather cooperated when the day started out.  Windy, sideways rain, perfect soup for dinner day!  I worked on Astonishing, added about a thousand words.  This took three times as long as it should have because of the damned noise.  They’re STILL working on that building across the street.  It’s been over a year.  To redo the front and the first floor, where the retail spaces are.  I could have built an entire apartment building, complete with plumbing, out of Legos by now.  By the time I finished writing for the day and had Flower Child back home from school, the rain was gone, the wind was gone,  the sky was perfectly clear, and it was 70 degrees outside.  Of course.  Well forget it,   I had the makings for soup, soup is what I was making.

Except I was looking at that beer and decided I’d rather drink it than put it in the soup.  White wine base it is!  Shoot, then I should put in a dollop of brandy for depth.  (Mrs Fringe, Flower Child, and Fatigue are all vegetarians, so I use vegetable stock, not beef.  Poor, poor flesh eating Husband.)  I didn’t have any brandy.  Or cognac.  What the hell, I added a splash of Cabernet.

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A good time was had by all, Flower Child showed Fatigue all of her more recent sketches. A lovely Friday Night Madness indeed.

Happy Saturday, Fringelings!

Today

I went here

and my head exploded at seeing the ride on mower in the quiet zone.

and my head exploded at seeing the mower in the quiet zone.

And I wore this

Turtle.

Turtle.

And I brought these

Green for turtles, green for mitochondrial disorders.

Green for turtles, green for mitochondrial disorders.

DSCN2970

And then I did this

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When I arrived, there was a homeless man playing guitar next to the Imagine mosaic.  There’s always someone there singing and or playing.  But usually, they’re singing Imagine.  Today, as I walked past, he was playing and singing Let It Be, the song Nerd Child played and sang at my mother’s funeral.

DSCN2983 DSCN2984

I did this in honor of an exceptionally brave little warrior.  Friends across the country released balloons or planted bulbs to show support, respect, love, and mourn with a friend when we couldn’t be with her in person.

While I was in Strawberry Fields releasing balloons; a friend, along with her husband and her daughter, was laying her six year old son to rest many miles away.  Too soon, too short, too heartbreaking.  Mitochondrial disease is something that most people have never heard of, but those who know it, know it all too well.  It’s an umbrella term, the name covering many sub-disorders, but all affect multiple systems of the body.  The mitochondria are the powerhouses of the cells, bringing oxygen, converting food to fuel and energy. Some forms of mito disease are more aggressive than others, and different people are affected to varying degrees.  There is no cure, not much in the way of treatment, and understanding of mito diseases is really in its infancy.

I’ve never met this friend in person, never met her son, but I know her, knew him, wept for every setback and cheered for every discharge from the hospital.  I’ve already blogged about online friendships, how very real many of them are.  But some have a depth I have no words for.  Medical needs moms, special needs moms, the communities and friendships developed are invaluable and indescribable.

Mito sucks, epilepsy sucks, cystic fibrosis sucks, cancer sucks, neuro-transmitter disorders suck, von willebrand’s disease sucks, CDKL 5 sucks, all the assorted disorders rare and otherwise that most-people-can’t-even-name-the-color-of-the-ribbon suck.  But the friendships, the support?  Beautiful, pure, sometimes gut wrenching and always filled with love.

Rest in peace, sweet boy.

Judgement Day

Judgement Day

Judgement Day (Photo credit: Wikipedia)

is every day, here on the www.

I’ve talked before about how much I love the internet, the people I’ve met through it, blah blah yawn.  It’s a funny thing, though.  I continue to get lulled into a false sense of happy happy joy joy free love and learning, and then get biffed upside the head.

Not everyone you meet online is someone you’d want to sit and have a beer with.  So what?  Just like the offline world, smile, nod, and move on.

Except, online there seem to be a lot more people who don’t want to move along.  You know who I mean, the ones who paint themselves as experts in X, and believe it is their great duty and privilege, perhaps even an obligation, to engage in argument.   It took a bit for me to catch on to how this works for these cyber types.  When I first became engaged with online communities where you saw this type of action, I took the bait.  Argued back to explain my position, and proclaim my rights to my opinion.  Then I learned a bit more about how socializing through a screen works/can work, and would attempt to steer the discussion with a more civil tone.  Yah, done with that, too.

Journal of Community and Applied Social Psychology

Journal of Community and Applied Social Psychology (Photo credit: Wikipedia)

From there you find the people you enjoy spending online time with, and figure out how to narrow your interactions with others while still remaining engaged in the greater community.

Or not.  I no longer visit most of the forums I’ve joined over the years, because I found my “peeps” and we now interact in smaller groups through Facebook, email, sometimes even *gasp* face to face.  Let’s be honest, here, do I need to post questions and have discussions with 8000 other navel gazers?  Thirty, twenty, even ten can be sufficient for a lively debate and interesting discussion.  Every so often someone new gets brought in for fresh air and new perspectives.  Not only does everyone involved not have to agree, it’s a more productive discussion when they don’t.  I learn other people’s opinions, new facts, and my mind gets opened a bit wider.  As long as it’s all conducted with respect and basic courtesy, it’s all good.

Let’s look at that word again.  Respect.  It doesn’t matter if the poster is 14, 40, or 80 (and often you don’t know).  It isn’t my job to slam anyone else in a personal way.  I’m not talking about engaging in debate, but attacks that can/will be interpreted as personal.  You know what I find to be one of the best parts of being a grown up?  Understanding that not everyone will like me, and I won’t like everyone, and that is just fine.  In person or online, still fine.  Remember, I live in a small space.  I can’t fit an entire forum around my dinner table.  My laptop is old and cranky.  A reflection of me, it stops and freezes every time I click on a new post or thread.  It can easily take me 30 minutes to read two short threads, 45 if I want to reply.  In many ways that’s ok, it forces me to choose carefully before clicking.

There are internet trolls who are obvious trolls.  Fine.  Some are annoying, some are amusing.  But the tricky kind are those who don’t seem to understand

English: "Wikipedia troll at play" s...

English: “Wikipedia troll at play” sign, based on a yellow “Children at Play” sign that symbolizes a child kicking a ball. The ball was replaced by a Wikipedia globe, and the child’s head was decorated with unruly “hair” reminiscent of troll dolls. (Photo credit: Wikipedia)

they’re trolling, and are passionate about their way/belief being THE way.  The ONLY way, for everyone, and they must “correct” any and all who question a different path.  Personally, I’m a silly, flighty gal.  Know what I do when I see a question/thread/post that seems pointless to me?  I don’t click on it.  Forgive me, I’m such a radical.

Mmm hmm.  Would you and your hand like a room, buddy?<< phrased respectfully, of course.

Homestead-Nowhere-Motel

Homestead-Nowhere-Motel (Photo credit: Wikipedia)